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Giving feedback on what works to our GPs

Submitted by The_IBS_Team on Tue, 22/07/2008 - 14:29.

I was talking to a friend recently who is a GP, about what help she provides to patients that are diagnosed with IBS. One of the interesting points she made was how little feedback she gets from her patients when things work for them. This got me thinking that maybe she was right and that we only visit our GP when we are ill and suffering but would rarely tell them when we had sorted things out. In particular for IBS this would mean that Doctor's couldn't possibly know whether any of the products we take or lifestyle changes we make have helped and therefore make recomendations to other patients. Perhaps this is something we should do more often?

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GP - GOOD BAD OR UGLY ABOUT WHATS GOING RIGHT

Submitted by Pickles on Sat, 16/08/2008 - 10:16.

Hi,

I have what I think is a very good GP. With regard to IBS, I had it for years and years. I was looking after my mother. And, I was told it would clear up when she passed away by my GP. He told me this as a friend, and I believed him. Perhaps I hadnt been strong enough when I told him how bad my pain was!

We have always had a good diet, 5 a day - sometimes 10! But 29 years ago I had my son by ceaser and a very rushed job it was, which was extremely infected by the time the surgeon had finished, once he got round to it. After, I was very constipated, so Fybogel, prunes, etc followed.

So having that for years, then IBS started, no specialist, just thats what it is. About 6 years ago I asked to see a specialist - IBS and Diverticulitus -severe. We might take a piece of your bowel out next time it flares up. Amytriptilene for nerve endings, Fybogel. Didnt take Amytrip for more than 1 week. Had to go back 2 years later things were worse, too late now throughout the bowel, pouches etc..... a very fed up pickles.

So, I still eat all the fruit and veg, always took a liquid probiotic, and then had to start aspirin. Things improved dramatically for some reason - so I wrote to the consultant telling him. (This was a private guy!) He didnt respond even.

I changed my probiotic to ProBion, and touch the largest piece of wood you can lay your hands on, for the last three months, very little pain with IBS - and none with the other!

It works for me at the moment, buy you gottta stick with it. I asked for the three initial probiotic - my cousin in Shropshire gets it on prescription - alas, not Somerset! It seems doctors generally dont consider probiotics as a treatment. I have since found out that 6 cousins of mine suffer very similar problems, one has had a piece of bowel out, after having an abcess. One aunt I recently discovvered had Colon cancer (which no body talked about at the time, in case saying 'cancer' made it catching! So, it looks as if it maybe a family connection, or just familial?

Find me a GP who is really interested, and who has enough time to be so, and I will be happy.

regards, Pickles.

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Finding an interested GP with the time to help

Submitted by The_IBS_Team on Tue, 09/09/2008 - 11:19.

We think you might be right...that it is the time constraint that prevents GPs providing us with the individual attention we all deserve. Perhaps we need to learn to communicate more confidently so that they can apprectiate our problems more effectively and save them time in the process? 

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